I Can’t Even Fucking Listen to Music

Content/trigger warning: cursing, slurs (censored), disordered eating mention

So I have a new job.

It’s actually great. Well, mostly great. I’m doing something I love and that I’m good at, the location is fantastic, and most of the people are nice. Unfortunately, there’s always food around the office, which TFED (The Fucking Eating Disorder) is not pleased with. But anyway, I was at my new job and needing an afternoon caffeine fix, so I headed to Dunkin for their $2-latte-after-2-PM promotion. (I’m weak for espresso and deals. I admit it.)The music was too loud in Dunkin, which was almost an accessibility issue for me, and I was struggling to tune it out while I waited for my latte. A pop song was playing. I don’t like pop, so there was nothing remarkable about the song to me, but it was so damn loud it bored into my head. A generic female pop voice was singing some laterally misogynist sounding crap about another woman, and I barely had time to be annoyed by that before the song called this other woman “sweet but ps*cho”.

I swear.

For those of you who don’t know, I also curate two YouTube series, one about asexuality and one about my special interest in rock music. So you’d think this is the part where I say “well, pop songs may have saneist slurs in the chorus, but you wouldn’t find that in rock, metal, or punk!” Yeah, I fucking wish. There is ableism out the ass in those genres. In metal, vidist expressions are extremely common, right up to and including Trivium having a song literally called “Blind Leading the Blind”. Punk music loves to use ableist slurs and terms to refer to oppressors and/or bigots, with even bands like Bad Cop/Bad Cop that are usually aware of intersecting oppressions dropping “l*natic” and “ins*ne”. Rock music in general uses ableist language like it’s going out of style; I could name you several rock songs that have “ps*cho” in the title.

And it gets worse. Punk music has a tendency to med shame in the name of going after “Big Pharma”. “OxyM*r*nic” (which also has an ableist slur against ID/DD/LD people in the title, would you look at that?) by NOFX and “Limiter” by Descendents (which is on an album called Hypercaffium Sp*zzinate WHY DO I LISTEN TO ANY PUNK MUSIC EVER AODSHUAASDOBASDAFFFF) come to mind. It’s not only punk music, either; Delain, a Dutch symphonic metal outfit and one of my favorite bands of all time, has a song called “Your Body Is a Battleground” that not only med shames, but implies that psychiatric disabilities aren’t real.

It’s not only the music itself, either. People who are into the rock scene, especially the reviewer sphere, also love their ableism. I recently watched a popular YouTube music reviewer I don’t ordinarily watch trash the Nostalgia Cockstain’s The Wall album, and the reviewer joked about losing his sanity and having a panic attack as the result of the badness of the album. Another YouTube music reviewer I like and respect and even support on Patreon is fond of calling 2edgy4u musicians “p*****paths” and “s****paths”. Pitchfork Media’s website contains album reviews that straight up use the fucking r-slur.

I’m not sure what the point of all this whining is. I guess everything I have discussed here is a good example of just how entrenched ableism is. Not just entrenched, either, but terrifyingly normalized. And the pervasiveness of ableism in punk is a good example of how even leftist spaces condone ableism.Now if you’ll excuse me, I’m going to go listen to Emilie Autumn, who writes about mental illness from the perspective of “wow, misogynableism sucks”.

Misogynableism and Greta Thunberg

Content/trigger warning: discussion of ableism, misogyny, and misogynableism; cursing

As with most of the things I blog about, I’m sure someone else has done a better job writing about this, but I’m going to try anyway.

I’m going to preface this entry by saying that Greta Thunberg, while she’s awesome, is not the only young climate activist we need to be paying attention to. Others include Autumn Peltier, Helena Gualinga, Tekanang, Penny Tovar, Lamboginny, Sarah-Anna Awad, Bertine Lakjohn, Liza Zhytkova, Veer Qumar Mattabadul, and Daniel Gbujie recently participated in the first UN Youth Climate Summit. They hail from all over the world and many of them are teenagers. Greta shouldn’t be getting all the attention because she’s white.

But we do need to talk about the misogynableism against her. Greta—who, for those who don’t know, is a sixteen-year-old Swedish climate change activist who recently testified about climate change at the UN—is Autistic, and unapologetic about it; she says being neurodivergent is a “superpower” for her. (I personally don’t like the supercrip narrative, but she’s sixteen and the narratives about Autisticness are different in Sweden compared to the US; give her a break.) Fox News recently called her mentally ill because she is Autistic, intending it as an insult and misunderstanding that Autisticness is not a mental illness but a neurodevelopmental disability. (Note: if you’re reading this blog, you damn well know that calling someone mentally ill shouldn’t be an insult. But Fox intended it as an insult because they’re saneist.) When Greta was preparing to speak in public a few weeks ago, she uttered the phrase “Sorry, my brain isn’t working properly.” Keep in mind that many Autistic people struggle with speaking and that English is not Greta’s first language. But Twitter took this and ran with it, with scores of people retweeting the video and calling Greta any number of ableist insults.

I saw at least one article calling the bullshit Greta was receiving misogyny. Do I think that Greta would be receiving less bullshit if she were male? Absolutely. Do I think that “misogyny” fully encapsulates the bullshit Greta is receiving? Absolutely not. This is especially evident in the way people insult her facial expressions. Greta has been described by the Autistic community as having “resting Autistic face”. While allistic people often make the effort to contort their faces into pleasant expressions with fake smiles in order to appear more…I don’t know, approachable? I don’t really get it…Autistic people often don’t bother with that (or if we do, we’re aware we’re only doing it to fulfill some bullshit allistic social contact). Greta doesn’t bother with that. She’s talking about serious issues and she looks serious while doing it. So she gets a lot of the misogynist “she’d be prettier/have more success/be more personable if she smiled more” and a lot of the ableist “look at her affect, she’s clearly [ableist insult of choice]”. The misogynist bullshit and ableist bullshit inform each other, resulting in misogynableist bullshit.

Much to my chagrin, it isn’t only misogynableist cockwaffles that are giving Greta bullshit. Some of the Autistic community is writing her off too. Why? Because in the United States, most of the Autistic community looks down on Aspie supremacy, and most of the Disabled community looks down on the supercrip narrative. For those who don’t know, Aspie supremacy is an attitude that some Autistic people who were diagnosed with Asperger’s have toward the rest of the Autistic community. This attitude can be described as “Oh, we’re not like ~*~those~*~ Autistic people who are low-functioning; we’re brilliant and gifted and better”. The supercrip narrative is a common ableist trope depicting Disabled people as “making up for” their disability (ugh) by doing things like climbing Mount Everest or making groundbreaking scientific discoveries. Obviously there’s nothing wrong with Disabled people doing those things; it’s when abled people start blubbering about how “they overcame their disabilities” and then expecting other Disabled people to just not be Disabled because “if xyz Disabled person can do abc, then clearly you don’t need your mobility device/accommodations/etc.” that it becomes a harmful supercrip narrative.

So yes, okay, some of what Greta Thunberg said could be interpreted as buying into the Aspie supremacy and/or supercrip narratives. I get it. But she also isn’t USian; my understanding is that Aspie supremacy isn’t really a concept that is discussed in the Swedish Autistic community. She also isn’t speaking her first language when she’s talking about Asperger’s being a superpower. Most importantly, she is fucking sixteen. I wonder if all of the grown ass Autistic people pooh-poohing Greta for not being intimately familiar with harmful ableist narratives knew about those narratives themselves at sixteen.

Tl;dr Greta Thunberg is a badass and shitting on her for being female and Disabled is terrible and bigoted, but shitting on her for not being perfect about Autisticness-related social justice concepts through a USian lens is also bad. Also, listen to young climate activists of color too, because many of them paved the way for Greta and they’re still out there kicking ass.

BAD ME I have not been listing my Patreon supporters at the end of blog entries. Many thanks to Ace, Emily, Hannah, Kael, Karina, and Sean! To be as cool as these people, visit Patreon.com/arzinzani to pledge. Even a dollar a month is massively helpful!

Goddammit, Sesame Street!

Content/trigger warning: discussion of virulent ableism including filicide, Autism $peaks, cursing

UUUUUUUUUUUUUUUUUUUUUUUUUUUUUUGH.

Why am I even doing this? Sara Luterman already wrote an article for Slate about this. I haven’t read it because I’m afraid I would just copy what she said for this blog entry…but if I did that, it’d probably be better than whatever I’m about to spit out.

ANYWAY. Some background.

Sesame Street has just partnered with the organization Autism Speaks, so I’ll give a little background on Sesame Street’s Autistic character, Julia, as well as some background on Autism Speaks. Julia was introduced to Sesame Street in 2015 as part of an initiative called “See Amazing in All Children”. One of the aims of Julia’s character was to introduce young allistic children to the idea of accepting Autistic people for who we are, even if we seem strange and unusual at first. (I would hope that the aim was also to allow Autistic children to see themselves represented, but I’m not that optimistic.) For example, “The Amazing Song” was used to demonstrate that Autistic people can feel, and Julia wore ear defenders when she was featured in the Macy’s Day Parade, normalizing Autistic people needing sensory protection. Julia even stims; her puppet has a special pair of arms that allow her to flap her hands.

Now for some background on Autism $peaks. If you’ve been reading my blog, you know that Autism $peaks is a pseudoscience- and fearmongering-peddling hate group that would love to see Autistic people eugenically eliminated. If you haven’t been reading my blog, now you know that. For more information on why A$ is a hate group, I wrote a blog entry about it: https://thisisforyoucarrie.blog/2018/04/03/autism-speaks-is-a-hate-group/

I believe that Autism $peaks, much to the chagrin of Autistic people, was involved from the get-go. To be frank, I’m not positive about that, and I don’t know exactly what hand A$ had in Julia’s creation or if they influenced Julia’s portrayal before now. I had trouble researching this because, like many Autistic people, I find reading about A$ triggering. (Also, Googling “Sesame Street Autism Speaks” seems to only bring up recent entries.) I do know that ASAN, the Autistic Self-Advocacy Network, an Autistic-run org, was also involved in Julia’s creation. This was crucial because we hardly ever get to be the arbiters of our own representation. So what has changed? Well, Sesame Street is partnering with A$ to—I swear to fuck I’m not making this up—push a “kit” that is supposed to help parents of a newly diagnosed Autistic kid to process the diagnosis as if their child were dead.

Again, I’m not bullshitting. I wish I were.

The 100-Day Kit, as it’s called, has a section outlining the five stages of grief. This is unbelievably harmful because it buys into the narrative that when a child is diagnosed as Autistic, any child that the parent/s could have wanted is dead and a new incomprehensible monster has taken their place. It paints Autisticness as a tragedy. Fucking excuse me but my brain is not a tragedy, thanks very much.

There are other problems with the 100 Day Kit, such as A$’s usual pseudoscience-pushing with a “cure” diet backed by precisely zero reproducible scientific research, but I don’t think I have to belabor the point. The 100-Day Kit promotes the idea that Autisticness is a tragedy and that parents should mourn for the precious allistic child they didn’t get when their child is diagnosed as Autistic. I mean, how the fuck do you think an Autistic child is going to feel when they see this shit? They’ll think their parents wish they were an entirely different person, or that their parents don’t love them. How is that seeing the amazing in every child, Sesame Street!? Not to mention the autism-as-tragedy narrative contributes to filicide, as I mentioned in the previously linked blog entry.

This decision is incontrovertibly harmful to children who see themselves in Julia, Sesame Street. This is why ASAN severed ties with you. This is why the Autistic community is begging you to reconsider your partnership with a hate group that would rather people like Julia—like me—not exist.

I have to stop now. This is too fucking upsetting. I’ll conclude with a quote from Jim Sinclair about why messages like A$’ are so harmful: “This is what we know, when you tell us of your fondest hopes and dreams for us: that your greatest wish is that one day we will cease to be, and strangers you can love will move in behind our faces.”

Mara’s First Protest

Content/trigger warning: cursing, Autism $peaks, discussion of ableism

I’m not quite sure why I didn’t think to write about this earlier, but I went to my first protest last month (June). Fittingly for me, I was protesting at one of Autism $peaks’ walks.

I went with a nifty little group called Autistics Against Curing Autism (AACA), and my fiancee accompanied me. We both made signs; my fiancee’s said “Autism $peaks doesn’t speak for me” and mine said “my brain is not a puzzle, goddammit”. (The “goddammit” was in much smaller letters.) My sign also featured a crossed-out A$ blue puzzle piece and a multicolored brain. The brain was hard to draw.

Here is my sign (photo taken by Timotheus Gordon, who can be found on Twitter at @timgordonjr):

Protest of one of [Autism Speaks'] Walks

The protest was harder than I anticipated it would be. Standing while holding a sign for several hours wasn’t all that bad, as I was wearing comfortable gym shoes (protip: if you’re ever attending a protest, wear comfy shoes), but what I didn’t anticipate was how fucking intimidating it was to see an unending wave of people whose views were diametrically opposed to mine, people who believed in a hate group’s mission, coming straight at me for three hours solid. I know intellectually that A$ has many supporters, but I have a hard time conceptualizing large numbers. And even if I could conceptualize large numbers, seeing concrete evidence of so many supporters buying into A$’s pro-eugenics ableist bullshit who think they’re supporting their Autistic family members by hating them was. Fuck, I can’t even describe it well. It felt like the bottom had fallen out of my stomach. I pitied the people in the walk who were ostensibly there out of love, but I was also angry at them for supporting a hate group that wanted me—and their (supposedly) loved ones—to not exist. I felt completely helpless, like I was trying to climb out of a pit of black holes using a ladder that was also made out of black holes. At least there weren’t pigs there; that would have terrified me even more.

We got…reactions. Some good, some bad, some weird. One allistic woman with two Autistic boys came up to us because she liked my poster(!) and asked what our problems with Autism $peaks were, because she just wanted what was best for her kids. We gave her a flyer and pointed her in the direction of some Autistic-run organizations. The only other possibly good reaction was someone in the walk noticing us and saying cheerily, “Look, they’re back!”. We puzzled over this for a while, because the person’s tone seemed very chipper, but why the hell would you be happy to see protesters two years in a row and still do the thing being protested? Oy, allistics. As far as the other reactions…well…

The worst was someone, a white man, who yelled at us “What’s wrong with you people!?”. That scared me, but I was pissed, too. I wanted to say “I know what you think is wrong with us” or something, but I wasn’t quick enough to come up with something pithy, and it wouldn’t have been a good idea to antagonize him anyway. Also, I’m kind of pants with facial expressions, but it was…weird to see people’s faces look bright and eager to read our signs, then watch their expressions turn to confusion or dismay. Part of me took a perverse pride in it. Part of me was scared. I don’t understand allistics at the best of times, and I was afraid of confrontation. My CPTSD does not like confrontation.

One of A$’s board members also came by and tried to tell us how he was glad we were advocating for ourselves and that he wanted to make sure the organization worked with self-advocates. I didn’t believe him for even a zeptosecond. I refused to shake his hand and gave him my best Eat Shit and Die look. This was rude; I don’t care. I was protesting, dammit.

Making matters even more uncomfortable was the radio station covering the event. (I would totally name names if I could remember which station it was. I think it was an Xstian station, but I’m not positive.) The DJ kept asking people in the walk what team they were on, and everyone was just so damn enthusiastic and happy to be promoting ableism. Despite the raging CPTSD, I was there to make a statement, and I wanted to go up to the DJ and say that I was part of a group protesting the walk. The person who organized the protest advised against it because it might invite pushback like a police presence (meep) at next year’s protest. So I hung back until after the event was over, and then another member of AACA and I headed over to the DJ and gave him a flyer. He seemed receptive, but maybe he didn’t like confrontation either.

Then AACA went for lunch to recoup fuel and discuss the protest. I feel like that was key. It definitely helped me recoup fuel, and I felt like the discussion was productive. It was also comforting to be around other Autistic people. Post-protest decompression and discussion seems like good social justice praxis to me for multiple reasons.

I’m so glad my fiancee was there. Watching the three-hour cavalcade of blue coming at our tiny group—even though they kept moving their trajectory father away from us, as if we were scaring them—might have been too much for me otherwise. I don’t know if I would have been able to last all three hours without my fiancee standing next to me.

I’m definitely going to next year’s protest (if my fiancee is able to come with me), but fuck do I hope there still aren’t cops.

P.S. I can’t figure out how to use tags anymore…WordPress, did you change something? I’m Autistic! I don’t do change!

The Story of My Twitter Handle

Content/trigger warning: cursing, mention of several forms of bigotry

Story time.

Those who follow me on Twitter know that my Twitter name is now “Mara The Id of Social Justice RAGE Lee”. This is because of a horrible interaction I had with a popular elitist, fauxminist YouTuber several years ago, and I’ve decided to laugh at it. But I want to talk about the story because I feel like call-outs happen in social justice, and how to reply to being called out constructively. That’s related to the horrible interaction, I promise.

Anyway, Elitist Fauxminist YouTuber (hereafter referred to as EFYT) was dating another YouTuber, hereafter referred to as YouTuber Boyfriend, when this happened. YouTuber Boyfriend made one too many neurotypicalist comments and had also been bad at checking his cis privilege and had been…let’s just say clumsy when discussing anti-Black racism. So I left a comment about all three areas of fuck-uppery.

Anyway, I posted on Tumblr about my feeling like I’d acted like an ~*~SJW~*~ and was hoping to not have that internal struggle next time I called someone out.

That was a mistake.

EFYT saw the Tumblr post.

She agreed that I had acted like an “SJW” and, bafflingly, thought that I was making all of her boyfriend’s fuck-ups about race. She even said “why, oh why are you making this about race?” Uh, I wasn’t. You just misinterpreted what I wrote. Maybe you don’t know what “neurotypical” means, EFYT.

It gets worse. She then encouraged her followers to correct me about how I had fucked up/been an “SJW”. I was not just dragged, but drawn and quartered. It got so bad I dissociated for…I want to say two days. Too damn long, in any case.

So what does this have to do with my Twitter handle? Well, EFYT included the phrase “the id of social justice RAAAAAAAAAAAGE” in her Mara-sucks-let’s-tell-her-why post. And something about that phrase actually appeals to me. Probably because it nicely encapsulates both her hypocrisy and someone who’s supposedly a feminist using her advanced vocabulary to rub it in people’s faces that SHE IS EDUMACATED AND THEREFORE A BETTER PERSON THAN YOU. I also like that it is an Ayn Randian level of sounding high-concept but actually being utter bullshit. I mean…she wants to tell me I’m mired in “the id of social justice rage”? Fine. I guess I am (whatever the fuck it actually means). So sue me. I’m so sorry I am passionate when it comes to caring about other people.

Am I biased because she used the word “id” and I think Freud can get fucked in the ear with a Saguaro? Probably. Am I biased specifically against this person because seeing her face pop up in my YT recommendations is a dissociation trigger? Uh, YEAH. Of course I am. But I thought she was an elitist fauxminist before she retraumatized me, so. Make of that what you will.

You know, even though I remember this like it was yesterday (thanks, PTSD), it actually happened sometime between 2012 and 2014. So hopefully EFYT is a better person now. I still think having “The Id of Social Justice RAGE” in my Twitter name is funny.

What’s the takeaway? Don’t mess with Maui when he’s on a breakaway! Er. Sorry, I was just listening to the Moana soundtrack. The actual takeaway is that the knee-jerk reaction to someone calling out someone you care about is to defend the person you care about or even to attack the person doing the call-out. Assuming it’s a real call-out and not a shitty ad hominem attack…look, no one wants to believe that someone they love did a bad thing. But we’re all fallible, and I don’t know a single person who isn’t still unlearning at least some of the lessons the kyriarchy taught us. So when your partner fucks up, try to help them learn constructively. Comfort them if they’re upset and tell them you know they’re capable of doing better. And don’t send your followers after the person doing the call-out. Even if you don’t ask your followers to be abusive, they will be.

Fire Theory and My Grocery Shopping Experience

Content/trigger warning: cursing

You need to know what fire theory is to fully understand this entry, so here’s my entry on fire theory: https://thisisforyoucarrie.blog/2019/02/01/fire-theory/

I fucking hate grocery shopping.

First of all, I’m tiny and have a lot of trouble maneuvering grocery carts. Second, the grocery store is too peopley. Not only are they making people noise, the people in grocery stores are unpredictable. Are they going to stop and pick up some olive oil right in front of me and I’ll have to halt suddenly and pray I don’t run into them, or go around them and maybe hit someone else? Third, there are sometimes smells that are sensory nopes for me, Fourth, with me worrying so much about the people, I often can’t find the items I need and end up going home without everything on my list.

Last night I went grocery shopping because I needed toilet paper and cat litter, and I couldn’t wait for Peapod. I can’t drive, so I took my personal shopping cart with a broken wheel that I can’t afford to replace and made the walk to the nearest grocery store about a mile away. I had a few other items on my  grocery list and wasn’t able to get all of them, but whatever; the problem was walking home.

I had a meltdown after the sixth time my heavy grocery cart with cat litter and cat food in it ran over my heel. Everyone in my zip code probably heard me screaming and crying. According to spoon theory, I would have been out of spoons after that meltdown. I was Done.

But I had to get home and carry my groceries up three flights of stairs.

So I did.

According to fire theory, after my meltdown, I was down to an ember; ostensibly unable to do anything but left with no choice, so I did the thing. I told myself I could have a chocolate donut if I got home, so my depleted ass walked home and hauled the groceries up the stairs and inhaled that donut. But after that, I changed into my pajamas and lay in bed crying for the rest of the night and wasn’t able to cook or shower even though I needed to do both. Spoon theory would hold that after I was out of spoons, I couldn’t have gotten home. But come hell or high water, I got my ass and the groceries and the rest of me home.

This is one of the reasons I favor fire theory. Fire theory explains how I got home; embers can be persuaded to burn under the right conditions, in this case the fact that lying on the sidewalk crying wasn’t an option.

I also think fire theory makes more sense as a metaphor and calling oneself a fire elemental is just cool sounding, but mostly I wanted to tell this story.
A less funny story is that I fell victim to a job scam. If you’re a Patron and have seen this a shitzillion times, I’m sorry, and if this is your first time hearing about this, please share my GoFundMe and donate if you can. https://www.gofundme.com/help-mara-lee-get-through-june

I’m also doing a fundraiser stream on YouTube. I did a short video on that. https://www.youtube.com/watch?v=jm5YKa6zrls&t=1s
I have actually decided to so the stream from 3 to 5, not 2 to 4.

Thanks to my Patrons! I have multiple Patrons now! These awesome people are Karina, Ace, Emily, Sean, and Hannah.

Identity-First Language and Why You Should Default to It

Content/trigger warning: cursing, discussion of ableism

I feel like other people (*cough* Autistic Hoya *cough*) have done this better than I can, but I’m going to try my hand at this: why “D/disabled” is preferable to “person with a disability”, i.e. why person-first language (PFL) is a load of crap and identity-first language (IFL) is more respectful. Note: this is in general. There are individuals who use person-first language, and—as far as I’ve heard—people with Down syndrome prefer, well, the phrasing I just used. I have also seen PFL being used for people with cancer.

So, why (in general) should you say “disabled” instead of “person with a disability”? Several reasons. One, the social model aspect of disability. I maintain that the social model of disability, which posits that disability exists because society is not set up to accommodate Disabled people, is flawed—even with all access barriers removed, my brain would still be trying to kill me, and it would still fuck seriously with my ability to do things—but the ablenormativity inherent in society does indeed disable Disabled people. The use of “person with a disability” instead of “disabled” ignores this crucial fact.

Two, “person with a disability” implies that disability can be separated from a person. Because of the social aspect of disability, this is impossible. This is especially true for Autistic people because our Autisticness informs so many aspects of our lives that it is impossible for autism to be separated from the person. Even allistic Disabled people, though, cannot be separated from their experiences of being Disabled by society and their bodies/brains. And you know what? “Disabled” is not a dirty word, and that is because disability does not reflect negatively on the person. Seeing disability as reflecting negatively on the Disabled person is ableism, full stop.

Three, “person with a disability” is a misguided attempt at making people see Disabled people’s humanity that is predicated on an ableist idea. If someone has to say “person with a disability” in order to remind themselves that a Disabled person is indeed a person, that’s rooted in ableism too deep to be fixed by an incorrect euphemism that is in and of itself ableist. PFL, instead of emphasizing a person’s humanity, plays into the aforementioned (point two) ableist concept of disability; if you have to separate disability from the person because “oooooh disability is BAD”, that’s ableism. (Remember how I said earlier, though, that PFL is preferred for people with cancer? Yeah, this is why. People saying that cancer is horrible are completely right.)

Look, words mean things and semantics have an effect on how people think. IFL recognizes the experiences and identity and humanity of Disabled people. PFL dehumanizes Disabled people. Which one would you rather use as a default? (If you say PFL, get the fuck off my blog.)

Thanks to my only patron, Karina! If you would like to be as cool as Karina and support me on Patreon, check out my Patreon at https://www.patreon.com/ARZinzani. If you’re only interested in supporting my blog, not my other two projects, I’ve now changed my Patreon setup so you can pledge per month, not per paid post.

May the 4th Be With You (2019); Acceptance vs. Awareness, Revisited

Content/trigger warning: abuse mention, cursing, slurs (censored)

Happy Star Wars Day!

Honestly, one of my favorite parts of Star Wars Day is that it’s in May, meaning that fucking April is over. (I should just call it Fucking April from now on. It’s no longer April. It’s Fucking April. Or Autism Hell Month.) Unfortunately, when I escaped domestic abuse back in January, I forgot to bring my glitter eye shadow with me. So I’m wearing a glittery shawl, glittery nail polish, glittery earrings, and eye shadow that has at least some glitter in it. And a shirt with Carrie Fisher’s signature on it.

Anyway, May. May is also Mental Health Awareness Month, which…yeah, I’m not big on that name. As I’ve mentioned on this blog before–specifically in regards to autism–“awareness” is not the best concept to use in pro-ND activism. So I’m going to use this entry to talk a little about the terminology surrounding Mental Health Awareness Month and similar concepts related to pro-ND activism.

In my acceptance vs. awareness entry, I said the following:

Needless to say, I don’t like awareness campaigns. This makes me nervous when I see awareness campaigns for mental illnesses. “Awareness”, to me, will always have the connotation of “be aware, these people are Other”. It matters quite a bit, though, who runs the campaigns. Autism $peaks’ flavor of “bewareness” is motivated by allistics who hold an inherently bigoted view of Autistic people. Many mental illness awareness campaigns are actually run by people with the illness. That makes a huge difference. I would still prefer to see acceptance campaigns because I don’t like the connotation of “awareness”, but that might be me.

Yeah, I don’t think it’s just me. “Awareness” isn’t enough. Mentally healthy people are aware of psychotic disorders and they still use “psychotic” to describe violent assholes. Mentally healthy people are aware of cluster B disorders and still use “n*rc*ss*st”, “p****path”, and “s****path” to describe abusers. Mentally healthy people are aware of PTSD and they still use “triggered” to mean “offended”. Mentally healthy people are aware of depression and they still don’t know not to call the police for “wellness checks” when a loved one is suicidal.

We have awareness. What we need now is acceptance. This is necessary in part because acceptance requires understanding. I’ve seen the pattern so many times of mentally healthy people claiming they support their mentally ill loved ones but freaking out and being unsupportive and straight up saneist as soon as their loved ones start showing symptoms. Acceptance means knowing that being mentally ill means having certain traits and symptoms and not being a dickweed when a person shows those traits or symptoms.

Of course, this means that mentally healthy people need to be educated about how mental illness actually works. That, to me, is what “awareness” campaigns should actually be; not just saying “whatever percent of people have X diagnosis” but saying “X diagnosis means [symptoms A, B, and C]” and “X diagnosis does not mean [saneist stereotypes D, E, and F]”. I’m not so naive that I think that all mentally healthy people are going to learn from acceptance campaigns and stop being saneist as soon as they learn the truth about mental illness, but I do think that acceptance campaigns would be a good place to start.

As long as I’m yammering about terms, I don’t like the term “mental health advocate”. A lot of people call Carrie that, but it doesn’t make sense to me. Most “mental health advocates” are actually mentally ill people who talk about the absence of mental health. Being Autistic, I like the term “self-advocate”, which we in the Autie community often use–hell, there’s an entire big Autistic justice organization called the Autistic Self-Advocacy Network–and I think “self-advocate” would make more sense than simply “advocate”. “Mental health advocates” don’t advocate for mental health so much as they self-advocate for a particular kind of disability justice: psychiatric disability/mental illness justice. So “mental illness self-advocate” or “psychiatric disability self-advocate” make more sense to me, because those terms seem to actually mean “mentally ill person who self-advocates for justice for mentally ill people”. If “mental illness advocates” can’t self-advocate because aren’t actually mentally ill, then…well, they probably need to shut up and pass the mic. I also like the idea of “[psychiatric] disability activist” as a term if “self-advocate” seems too, well, self-centered and not focused enough on fighting for justice for the mentally ill community.

Continuing to yammer about terms, I also said this in my last acceptance vs. awareness entry:

Side note: “stigma” is really a manifestation of neurotypicalism. It’s a system of oppression, not just an unfortunate opinion. That’s important to keep in mind.

Still true. Because of this, I don’t like it when people talk about “destigmatizing mental illness” or “mental illness stigma” without mentioning the larger context. Just saying “stigma” isn’t enough because it doesn’t get at the root of the problem. I’d prefer that people say “mental illness stigma as a result of saneism”. Talking about stigma is fine–it totally exists and is a real problem–but the reason why stigma exists is that society is set up to oppress mentally ill people and privilege mentally healthy people. The big picture is always important in social justice. And this includes acknowledging intersecting axes of oppression as well; there are some denizens of Disabled Twitter who I really admire, especially @autistichoya, who often talk about how white supremacy supports ableism and that there is no dismantling ableism without dismantling white supremacy. I really hope to feature a guest blogger on that topic one day. Speaking of passing the mic.

That’s all I have for today. May the Fourth be with you. Wear #glitterforCarrie and fight for justice for mentally ill people in her honor.

Thanks to my only Patreon supporter, Karina! To become as cool as Karina, please consider supporting my work on Patreon: My Patreon.

I Did an Activism for Autism Hell Month

Content/trigger warning: filicide, Autism $peaks mention, fucking April

I fucking hate April.

April drains the Autistic community. I keep hearing stories of burnout, depression, more frequent meltdowns and shutdowns, and completely shot executive function.

I feel that. I’ve been pretty damn useless this month.

But I did do something for April as a middle finger to Autism $peaks. I went to an open mic and sang a song in Katie McCarron’s memory, prefacing it with the story of her murder. My amazing fiancee—she proposed after my performance, and yes, I’m incandescently happy about that, and of course I said yes—filmed it. So here it is, with a transcript. Before the filming started, I introduced myself with my stage name, Valkyrja, which is Old Norse for “valkyrie”. Even before that, I asked if I could take the mic off the stand; the MC jokingly gave me a hard time and my Autistic ass thought he was being serious. Anyway, here’s the video and the transcript.

Transcript:

…and you can call me Valkyrie if you can’t flip the “r”, or if you aren’t interested in Old Norse, or whatever. And the song I have chosen to perform tonight is actually…[sigh] in memoriam, so I’d like to give a little context before I start, if that’s okay. I cannot see jack with these lights; I don’t know if I’m getting a nod, so I’m just going to go ahead.

Okay, I need you all to imagine something for me. I need you to imagine that you have a condition that causes you to perceive and interact with the world differently from most people. And yes, it’s certainly a disability, but it’s mostly so because of the way society treats you. Got that so far? Okay. Now, I need you to imagine that a MASSIVE charity—supposedly—gets the director of the third Harry Potter movie to make a short film about what it’s like to live with this condition…and they don’t get anyone with the condition to be involved. What the fuck, right? They got the director of The Prisoner of fucking Azkaban to direct the thing and couldn’t get anyone with the condition to even be interviewed? What the hell, right?

Now…this is where it starts getting fucked up. Trigger warning for ableism and murder. So, I want you to imagine that a board member on the charity who does not have the condition says in front of her daughter who does, in this film, she wishes she could kill her daughter and then herself.

[Crowd “oooh”s]

But she can’t, because she has a normal child to take care of. Stay with me.

[Someone in crowd says “all right”]

Now imagine this film premieres. A woman who doesn’t have the condition but has a child who does sees it. Three days later, this woman murders her young daughter who has the condition. You’d make some connections in your head about this series of events, wouldn’t you?

THEY HAPPENED. The “charity” is Autism Speaks. The film is Autism Every Day, which premiered in 2006, and yes, they got Alfonso Cuaron, the director of Harry Potter and the Prisoner of Azkaban to direct, and yes, his name is fucking mud in the Autistic community right now. We hate that guy. And if you couldn’t tell by the way I couldn’t tell he [indicates MC, who was being an asshole earlier] was being an asshole, I’m Autistic as fuck.

So the young woman who was unfortunately murdered. Her name was Katie McCarron, and I would like to dedicate this performance of “We Are the Others” by Delain to her, may she rest in power.

[sigh] Okay, if I’m not gonna cry, I’m ready to sing.

I’m walking with Katie tonight,
She lives in the air that I breathe;
I can’t get it out of my mind
How you were left to bleed
Was it how you stim?
Or how you act?
I can’t believe
How she could act so violently,
Without regret,
But we will not forget

We are the others,
We are the cast outs,
We’re the outsiders
But you can’t hide us,
We are the others,
Black-eyed and battered,
You’re not out there on your own
If you feel mistreated,
Torn and cheated,
You’re not alone,
We are the others (we are the others)

As simple as air in your lungs
As simple as words on your lips
And no one should take that away
No one should argue this
Now with our heads up high
We’ll carry on,
And carry out,
And we won’t let them get us down,
Wear us out,
‘Cause we are not alone

We are the others,
We are the cast outs,
We’re the outsiders
But you can’t hide us,
We are the others,
Black-eyed and battered,
You’re not out there on your own
If you feel mistreated,
Torn and cheated,
You’re not alone,
We are the others (we are the others)

Normal is not the norm,
It’s just a uniform
(We are the others)
Forget about the norm,
(We’re the outsiders)
Take off your uniform,
(We are the others)
We are all beautiful,
(We are the others)

We are the others,
We are the cast outs,
We’re the outsiders
But you can’t hide us,
We are the others,
Black-eyed and battered,
You’re not out there on your own
If you feel mistreated,
Torn and cheated,
You’re not alone,
We are the others (we are the others)
We are the others (we are the others)
We are the others

 

Many thanks to my sole patron, Karina! If you would like to be as awesome as Karina, enjoy my work, and would like to support me, please consider becoming a patron of mine on Patreon: https://www.patreon.com/ARZinzani

Misogynableism

Content/trigger warning: misogynableism (of course), cisheterosexism, exorsexism, violent ableism, sexual assault, ableist slurs, cursing

A while ago, I wrote an entry on emotional sensitivity and neurotypicalism. It contained the following quote:

“Anyway, let me give an example. Well, an intersectional example. ‘Hysteria’ used to be a mental illness. Women were actually diagnosed as ‘hysterical’ for, well, having strong feelings. Specifically, these feelings included anxiety, irritability, and nervousness. Oh, and sexually forward behavior. The term ‘hysteria’ was used because those dishing out the diagnosis literally believed that having a uterus caused the ‘mental illness’, and hysterectomies were sometimes carried out as treatment. (I’m mostly referring to what was happening to women in England and the States during the industrial era.) In any case, to this day, women are referred to as ‘hysterical’ when we are upset in order to delegitimize our feelings. This is an example of misogynableism: the intersection between misogyny and ableism. The use of the insult ‘hysteria’ is meant to undercut a woman’s experiences by insinuating that she is mentally ill, therefore her experiences and feelings about them can be ignored.”

Of course, there are women without uteruses and people with uteruses who are not women, but the Victorian-era white English and Statesians didn’t know that, and I stand by the assessment that “hysterical” is a misogynableist term. And I decided to do an entry on misogynableism.

If you’ve ever heard the phrase “don’t stick your dick in crazy”—with all its cisheterosexist assumptions intact—you’ve been exposed to misogynableism. No one ever says—again, with the cisheterosexist assumptions—“don’t let crazy stick their dick in you”. No, the big, scary problem is that the woman might be mentally ill.

The cisheterosexism in that example is starting to make me feel ill, so let’s move on to another example: the “hot, sane, single” meme. I had the misfortune of having to Google “hot, sane, single” for this entry as research, and DAMN did I find some doozies. Quotes from the execrable Tucker Max’s books. Reddit threads (naturally). YouTube videos. More traditional meme images. The idea of “hot, sane, single” is…ah hell this one’s heterosexist too. Why does the world suck? (Rhetorical question.) Anyway, the idea of “hot, sane, single” is that, according to misogynableist straight men, there is a problem among women that they can only be two of that trifecta. So yes, this is misogynist as fuck, and the fact that “sane” is one of the desirable traits makes it misogynableist.

A third example is a nerdy one, so bear with me. I play World of Warcraft. There’s a character in WoW called Jaina Proudmoore, and she was one of the few leaders in the game who was a known peacemonger, despite her interpersonal relationships being something of a Trauma Conga Line. And then her home—her entire fucking island—was destroyed. Horribly. And she experienced severe trauma from the event to the degree that her previously blonde hair turned white. Understandably, she decided to renounce her peaceful ways. She performed several morally questionable (at best) actions that were obvious to me as stemming from untreated—and, sadly, because Blizzard can’t write WoW women, yes I went there—uncontrolled (as in the character herself seemed to be making no attempt to rein in destructive impulses) PTSD. Rage at the source (or perceived source) of trauma is a lesser known PTSD symptom, but boy fucking howdy is it a symptom. Not to mention any actual character development of Jaina’s is ignored in the writing, which focuses only on her rage at her enemies, i.e., her PTSD symptoms.

Anyway, one of the quest rewards one can get in WoW is a picture of Jaina Proudmoore with blonde hair, and the description of it is “before she went crazy”. First of all, Blizz, you were the ones who wrote Jaina’s behavior, so fuck you for insulting her acting the way you decided to portray her. The portrayal itself is pretty misogynableist; using a female character as a prop to make players of one faction believe that the other faction is bad, all while calling obvious PTSD a saneist slur. (Yes, other WoW players, I know I simplified Jaina’s story, but…come on, you know WoW lore. I had to.)

The next example is a terrifying and depressing one, so hold on to your asses. Disabled women are twice as likely to be abused—sexually and otherwise—than their abled counterparts. And while Disabled people overall are three times more likely than abled people to be sexually assaulted at least once, the rate at which Disabled women are sexually assaulted is 83%. You read that right. Eighty-three percent of Disabled women will experience at least one sexual assault in their lifetime. If you want a direct comparison between men and women (I know, I know, exorsexist, but I couldn’t find stats on sexual assault of Disabled nonbinary people), 80% of ID/DD women will experience one sexual assault in their lifetime, compared to 30% of ID/DD men. Oh, right, source.

I’m super low on fuel right now, but I also want to mention fetishization of mentally ill women. “Why are the hot ones always crazy?”. Weird and creepy bullshit about how maybe you’re not supposed to stick your dick in crazy, but the crazy girls are better in bed. Recent depictions of Harley Quinn, especially in Suicide Squad. I…uh…there are probably more. Can’t think of any right now, but the next time you see one, think about those sexual assault statistics.

Of course, none of this even touches the intersections with queerness, race, religion, class, and more, but I decided to write about–or at least, start with–two axes I was most familiar with. You bet your ass I could write about how being a queer woman intersects with ableism. And intersections really need to be discussed more, because there’s no dismantling ableism without dismantling white supremacy, heteronormativity, capitalism, etc. Perhaps more on that later; I’m hoping I can get some guest bloggers who experience oppression that I don’t to help me with that.

Oh, right, and I have a Patreon now! https://www.patreon.com/ARZinzani If you’re learning from my blog, please consider supporting me. You’ll even get to vote on what other entries I write or, at higher tiers, request topics for me to write about.